Is there support out there for people with Syringomyelia and Arnold-Chiari Malformation?
Absolutely, there is!
One of the biggest battles that went with accepting the fact that I had Syringomyelia was the struggle to find more information about it. This was when I found out that what I had was as rare as my crazy type of comedy. Yes, I am a comedian but I do take this and all diseases VERY serious.
I have found lots of groups, Facebook pages and websites with great information on them. I put some of what I have found on the ‘Is There Support?‘ page on my website http://www.SyrinGoWhat.com. I hope that this page is a good resource of resources that can help you too.
We all need to help each other and help doctors help us.