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Although Syringomyelia may seem like hell at times and for some nearly all the time, but it also seems to be an interesting way to meet people and say HELLo.
I find the majority of my comfort with my family, the beach and resting but I also enjoy writing these stories, perspectives and a few good laughs. This often results in my wife and I meeting new folks. We love saying HELLo to everyone and hopefully cheer up their day and raise awareness.
We obviously can’t take the pain away from anyone, but a little lighthearted / funny, inspirational, and personal experiences may just be that quick physical or emotional pain vacation that someone needs.
Both Christy and I were brought up to love everyone and this is how we are bringing up our daughter as well. As a matter of fact my wife recently saw an older person and said, “Kaylea and I love old people.” However, me being older than Christy, I had the opportunity to point out the foot that she just had stuck in her mouth as I did my best to keep a straight face while laughing VERY hard on the inside.
We are like any other couple with ups and downs, difference of opinions, etc. Yet, we always agree that a simple HELLo can make a person’s day. We also agree that tickling a person when they have gas can turn into some interesting aromatic entertainment unless your spooning. No this is NOT just an Arkansas thing. 🙂
Syringomyelia SUCKS and we ALL can agree on that but the worst thing any of us can do is alienate ourselves or descend into a darkness of ‘no one understands’. There are plenty of people that ‘understand’ and I’ve listed lots of support groups for SM / CM warriors along with those that love and care for them on this page – http://syringowhat.com/is-there-support-for-syringomyelia-Chiari.
I would give this advise, one that sometimes I mess up, be open about what you are going through. Also, be receptive to how it makes those around you feel. You might find out that you both are affected by this disease, just in different ways. Understanding this is EXTREMELY important!
Anyhow, don’t be a stranger, share your stories, fellowship with others (with or with out your disease), never be afraid to laugh a little and just say HELLo.
If you see a post from us on Facebook or anywhere else for that matter, please feel free to say HELLo and we will do the same.
1 Thessalonians 5:11 NIV So then, encourage one another and build each other up, as you are doing.
Please feel free to send me your thoughts or more resource links using my contact page. Peace, Love, Pancakes… — Michael Doc Davis (SyrinGoWhat.com), fellow Syringomyelian