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This will likely not be unfamiliar to those that suffer from the same disease as I do. Syringomyelia seems to be a not so friendly life partner. When I think everything is getting better and I go to sleep, I wake to do the walk of pain once again each day.
Sometimes I wish my body was like Legos so that I could detach the parts that hurt. However, stepping on one of those Legos would be an entirely different ‘Walk of Pain’. I don’t know about you, but stepping on a dang Lego has made me dance a dance that I didn’t really know I knew.
What’s so interesting is how similar that pain is between a foot being imprinted by land mine Lego and the daily pain of Syringomyelia. The only difference is I don’t think Syringomyelia has ever made me dance unless jumping like a funky chicken or the seat comfort shuffle counts.
Maybe if my body could be like a Mr. Potato Head so that I could have interchangeable body parts. That could work but with my luck I would end up with Mrs. Potato Head’s spud implants or find my shoes in my butt compartment. That indeed would result in a ‘Walk of Pain’. By the way, I’m trying not to visualize walking with butt shoes.
Ok you might be able to tell that I’m a touch A.D.D… SQUIRREL! I just wish my attention could be as easily lost on the pain when it’s bad.
My wife and I have been finding some interesting options that seem to be helping some that include some muscle stretches, different sleeping positions (no longer sleeping on my stomach), CBD oil spray, turmeric spice added to foods, drinking more water, redusing sugar (not from my wife), reducing gluten foods, reducing any alcohol, reducing caffeine, reducing sodium, along with a couple of other things. The weight loss seems to be helping as well by lowering the pressure and strain on my back or spinal cord. All we can do is try, right?
My friends, please don’t give up on yourself because God will never give up on you.
I pray each day that God gives me strength and relief and He does. I thank God for my wife, daughter, family and supporters. I continually pray and hope that a cure can be found for all of us.
Matthew 4:24 NIV News about Him spreads all over Syria, and people brought to Him all who were ill with various diseases, those suffering severe pain, the demon-possessed, those having seizures, and the paralyzed; and He healed them.
Please feel free to send me your thoughts or more resource links using my contact page. Peace, Love, Pancakes… — Michael Doc Davis (SyrinGoWhat.com), fellow Syringomyelian