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Syringomyelia seems to be a never ending cycle of strife. What do I mean by that? Well, what I mean is there seems to be a never ending bitter argument between how I think my body should feel or what it can do and what Syringomyelia thinks. If I could kick my Syringomyelia’s butt, I would, but I think that might hurt a little since we share the same butt. 🙂
There also seems to be a never ending argument between those of us with Syringomyelia, doctors and other people that don’t understand it. Actually I really don’t understand it either but I know how it makes me feel.
I wake up and it feels like I am in some crazy game show where my body spins a ‘wheel of symptoms’ each morning. Monday, strange sensations in the legs. Tuesday, right leg is better than the left. Wednesday, spasms started and there isn’t an off or undo button. Thursday seem to be a really good day until I freak’n sneezed and there went the feeling in my toes. Friday… who cares, it’s FRIDAY! So this circle of strife just keeps on spinning but I WILL NOT LET SYRINGOMYELIA BEAT ME!
There are sometimes that I think I can’t win and then God fills my heart full of love or my wife and daughter love on me and POOF, I’m back in the ring to fight the next round. Each day I’m here, I look for the positives. Every time there is a new or different symptom, I always try to thank God for all of the many blessings He provides. Each day I am on this Earth, I win. Each day I wake, I see my wife and daughter. Each day I make it through, is another day I’m closer to God’s promise.
I will never see eye to eye with this Syringomyelia, especially when it thinks it’s the boss. I am in control, I just let it think it is. Syringomyelia and I have something in common though. In my household, I am the boss but only when my wife lets me. I wear the pants in the family, mainly because my wife doesn’t like wearing pants. Ha!
All joking aside, know that you are in control of your own outlook on life. Syringomyelia will try to persuade you to a more negative aspect but just tell it to kiss your butt. You got this!!! I got this!!! We got this!!! Say it loud… say it proud… SYRINGOMYELIA!!! YOU WILL NOT BEAT ME!!!
To all of you, I pray that you have increased or continued strength, better health and blessings every day.
Isaiah 41:10 NIV fear not, for I am with you; be not dismayed, for I am your God; I will strengthen you, I will help you, I will uphold you with my righteous right hand.