Tag: Syringo

Syringomyelia, an Unruly Teenager

Syringomyelia, The Unruly Teenager - SyrinGoWhat.com© SyrinGoWhat.com, Copyright Protected. Feel free to openly share this link anywhere, but please ask before copying this content or parts of this content elsewhere.

I don’t know about you but this Syringomyelia thing sure does seem like an unruly teenager.  To my body it seems to try to push my buttons and my patience.  I bet if it could beg to use my car over and over, sneak out at night or take money from my wallet, it would.  Ok, actually it does take money from my wallet.  Dang that child!!!

I think if it’s going to act like an unruly teenager, it should go to its room shut the door and do its own thing in there instead of in my body.  If I could ground this disease, I would.  Instead, it tries to ground me when my legs try to give out on me.    

Since this Syringoteen wants to live here, I think it needs to get a dang job and pay its own way in this house.  I’m not real sure who would hire a Syrinx, but I bet it would be great as a mime.  It could inflate, grow, annoy people, continuously to get in the way and be just as useless.

Syringomyelia, Ugly Spandex - SyrinGoWhat.comSo now my mind shifts to imagining what kind of clothes a Syrinx would wear.  I’m thinking it would be some sort of spinal spandex or something.  That stuff never looked good when it was ‘in fashion’ and it sure doesn’t feel good ‘in me’.  I guess I can only hope that this unruly teenager of a disease would just move out and live on its own. 

The next time I see a disrespectful, rude and / or obnoxious teenager, I’m just going to ask him or her if they are a Syrinx.  I’m sure the confused look on their face would be priceless.  Yes, I know… that’s likely not what people consider ‘raising awareness’.  Ha!  A different spin could be the next time I see my doctor, I could tell him that my teenager is acting up and is a pain in my back and / or neck.

Syringomyelia, I Make The Rules - SyrinGoWhat.comWhen it’s all said and done, this is my body, I pay the bills, so I make the rules.  However, my patience is wearing thin and I’m about to whoop it’s butt.  If it keeps this up, I’m going to send it away to military school.  Well at least I wish I could.  Regardless, it’s part of me and I’m learning to live with it. 

Even with the worst of kids, there are still better days than others.  I always thank God for EVERY good day and I pray for the next good day.  I pray that a cure can be found and good days will outnumber the bad ones for all of us.

Psalm 107:19-21 NRSV Then they cried to the LORD in their trouble, and he saved them from their distress.  He sent forth his word and healed them; he rescued them from the grave.  Let them give thanks to the LORD for his unfailing love and his wonderful deeds for men.

Please feel free to send me your thoughts or more resource links using my contact page.   Peace, Love, Pancakes… — Michael Doc Davis (SyrinGoWhat.com), fellow Syringomyelian