Here is a great Caregiver Quick-Tip Pocket Guide from WORLDWIDE SYRINGOMYELIA & CHIARI TASK FORCE INC. This organization is a wonderful group of people helping all of us and providing ways for us to connect to each other. They are the first organization in the United States led by nurses and physicians to stand behind Syringomyelia as a disease! There are lots of other materials such as this on their website — http://www.wstfcure.org.
