Tag: syrinx

Is it or is it not from Syringomyelia?

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Confused about pain related to Syringomyelia© SyrinGoWhat.com, Copyright Protected. Feel free to openly share this link anywhere, but please ask before copying this content or parts of this content elsewhere.

Some of the suckiest (likely not a word) things about having Syringomyelia is that it’s difficult to know if what is going on with your body is related to it or not.  Since Syringomyelia affects your nerves and the muscles controlled by them, one can confuse a byproduct of the disease, something directly related to it or not related to it at all.  An example would be your back causing leg muscle weakness making you not walk in the way your body is designed causing your knee to hurt.  Once your knee hurts, you walk less and this causes muscle atrophy which causes more pain.  This type of knee pain and muscle atrophy wasn’t directly caused by the disease.  There are even times that side effects of the medications I have to take resemble symptoms from the disease.  With that being said, medications are not always the answer.  It gets easy to blame Syringomyelia for everything that hurts or doesn’t work right but I’m starting to realized this isn’t always the case!  I will continue to push myself, exercise, stretch, and work hard to walk properly.  Don’t get me wrong, Syringomyelia causes a lot of issues mentioned on the ‘What is it?‘ page.  This is NOT a disorder, it IS a disease that has NO cure but I will NOT just accept ‘It is what it is’ and I WILL live and love my life.  The lessons learned for me are that not everything is what it appears to be and always think more broadly than what your doctor will. 

Please keep everyone that is suffering from this and other diseases in your prayers.  God listens and God heals!  

Exodus 23:25 NIV “Worship the LORD your God, and his blessing will be on your food and water. I will take away sickness from among you,”

Please feel free to send me your thoughts using my contact page. — Michael Doc Davis (SyringGWhat.com)

Life’s little victories over Syringomyelia

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LifesVictories© SyrinGoWhat.com, Copyright Protected. Feel free to openly share this link anywhere, but please ask before copying this content or parts of this content elsewhere.

Life’s little victories for some are not the same as it is with others.  As a person with Syringomyelia these victories for me come in the forms of being able to wake up in the morning, lift my leg or legs to take a step, have a few seconds without pain or a moment when I can feel a part of my body that I haven’t felt in some time.  I count myself lucky.  There are some in much worse situations than mine that are just happy to be able to breath, not have a headache for a full day or even a few minutes or knowing when they need to use the bathroom.  Although I have been handed a deck that is stacked against me, I still feel blessed.  This could be far worse but God is working to keep my disease in check.  I thank Him daily and I do not blame Him.  For more on my story on how all this craziness started, just look at the about page on this website.

I thank you all for your prayers and love.  Keep smiling and laughing my friends.  Life is entirely too short not too.

Deuteronomy 28:2 NIV “All these blessings will come upon you and accompany you if you obey the LORD your God:”

Please feel free to send me your thoughts using my contact page. — Michael Doc Davis (SyrinGoWhat.com)

Syringomyelia Caregiver Quick-Tip Pocket Guide from wstfcure.org

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Here is a great Caregiver Quick-Tip Pocket Guide from WORLDWIDE SYRINGOMYELIA & CHIARI TASK FORCE INC.  This organization is a wonderful group of people helping all of us and providing ways for us to connect to each other.  They are the first organization in the United States led by nurses and physicians to stand behind Syringomyelia as a disease!  There are lots of other materials such as this on their website — http://www.wstfcure.org.

Here is a great Caregiver Quick-Tip Pocket Guide from WORLDWIDE SYRINGOMYELIA & CHIARI TASK FORCE INC.