Tag: syringomyelia

Life’s little victories over Syringomyelia

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Life’s little victories for some are not the same as it is with others.  As a person with Syringomyelia these victories for me come in the forms of being able to wake up in the morning, lift my leg or legs to take a step, have a few seconds without pain or a moment when I can feel a part of my body that I haven’t felt in some time.  I count myself lucky.  There are some in much worse situations than mine that are just happy to be able to breath, not have a headache for a full day or even a few minutes or knowing when they need to use the bathroom.  Although I have been handed a deck that is stacked against me, I still feel blessed.  This could be far worse but God is working to keep my disease in check.  I thank Him daily and I do not blame Him.  For more on my story on how all this craziness started, just look at the about page on this website.

I thank you all for your prayers and love.  Keep smiling and laughing my friends.  Life is entirely too short not too.

Deuteronomy 28:2 NIV “All these blessings will come upon you and accompany you if you obey the LORD your God:”

Please feel free to send me your thoughts using my contact page. — Michael Doc Davis (SyrinGoWhat.com)

Syringomyelia Caregiver Quick-Tip Pocket Guide from wstfcure.org

Here is a great Caregiver Quick-Tip Pocket Guide from WORLDWIDE SYRINGOMYELIA & CHIARI TASK FORCE INC.  This organization is a wonderful group of people helping all of us and providing ways for us to connect to each other.  They are the first organization in the United States led by nurses and physicians to stand behind Syringomyelia as a disease!  There are lots of other materials such as this on their website — http://www.wstfcure.org.

Here is a great Caregiver Quick-Tip Pocket Guide from WORLDWIDE SYRINGOMYELIA & CHIARI TASK FORCE INC.